EURORDIS Board meeting, Monticchiello, Italy

EURORDIS Board Meeting held this time in Italy, in a truly unique space in the world, Monticchiello village was twofold: to analyze the present work EURORDIS and resize and adjust strategy for years Eurordis come.
Eurordis made ​​great changes in recent years in European and international level in addressing rare diseases. Because this activity exception, patients are now able to make their voices heard through various committees and working groups at European level, including EUCERD. Eurordis determined the formation of an environment of trust, information sharing and solidarity across borders.
  Big changes were produced and nationally changes caused by common activities at European level, have emerged best practice models that have been transferred to the individual Member States were organized joint actions, similar and in the same time period These actions generated as a stronger impact at all levels.
The meeting also discussed the fact that in the coming years will have to face new challenges:
- Improved diagnostic capability through international cooperation and networking of European reference
- Increasing the number of patients that must be managed health care systems in the Member States
- Patients will need to be more aware, educated and informed about their treatment and therapeutic possibilities, to fight for their rights;
- The international economic crisis will increase the importance and impact of specialized social services for patients with RD.
 
Data: 
Friday, July 6, 2012