THE 6TH INTERNATIONAL SCIENTIFICPRADER WILLI SYNDROME CONFERENCE ? THE FIRST PRADER WILLI SYNDROME AND RARE DISEASES CONFERENCE FROM ROMANIA ? JUNE 21-24, CLUJ

Submitted by alexandra persa on Thu, 03/29/2012 - 21:24

For the first time, Romania ? through RPWA, was selected by the world organization IPWSO to organize in June 21-24 2007 the International Prader Willi Congress. Representatives from over 70 countries will participate ? specialists, patients and parents and the theme selected is: ?Concentrate on the positive aspects of Prader Willi Syndrome?. Within this even we will organize a conference on the global approach of rare diseases. 

          OBJECTIVES:

► To improve access to information on diagnosis and management of Prader Willi Syndrome and other rare genetic diseases;

► Direct access to information on results of international research, treatments and orphan drugs;

► Creation of an international support network, at the level of families s well as specialists and medical institutions; 

► Development of national and international partnerships for approaching PWS and other rare genetic diseases;

            ACHIEVEMENTS:

► Meetings with members of the organization committee, setting the program of the conference and of the budget; 

►Meetings between IPWSO representatives with those of the Medicine and Pharmacy University ?Iuliu Hatieganu? in order to discuss issues related to a possible collaboration in organizing this world event ;

► Participation to various national and international conferences and promotion of the conference; 

►Identification of potential funders for organizing the conference.